Date of Award
Doctor of Nursing Practice Final Manuscript
Doctor of Nursing Practice
Dr. Martha Fuller PhD, PPCNP-BC
Dr. Elizabeth Valles, DNP, CPNP, FNP
Congenital heart disease (CHD) is the most common birth defect and affects almost 1% of all live births. Treatment anxiety is common among children with CHD who undergo multiple procedures early in their lifetime. Dramatically increased life spans for this cardiac population has led to a shift from focusing on survival to their long-term health outcomes.
Administration of the Peds QL Cardiac Module 3.0 assesses health related quality of life (HRQOL) during annual visits to a Cardiac Neurodevelopmental (ND) Clinic by evaluating the level of Treatment Anxiety a patient experiences during healthcare appointments. The questionnaire scores are inversely rated, with higher scores correlating to less Treatment Anxiety. Patients and parents/guardians received targeted education on treatment anxiety, its causes, coping tools, and resources. Pre/post measures of treatment anxiety were measured.
There were 7 children aged 5-17 years old enrolled over a period of three months. All but one had measurably decreased treatment anxiety after the intervention. Almost every parent endorsed feelings of being heard and gratitude for the education intervention as well.
This project is a simple, yet effective demonstration that proper education can positively influence pediatric patient outcomes. Focusing on mental health and long-term outcomes for patients with CHD is important and achievable during annual ND appointments.
Application to Practice:
Implementing age-appropriate education on treatment anxiety and coping mechanisms during ND visits is feasible and cost-saving, improving improves short- and long-term outcomes for mental health in congenital cardiac patients. More research is needed for longer term outcomes with these interventions.
Digital USD Citation
Nagel, Mary, "Treatment Anxiety Education for Pediatric Cardiac Neurodevelopmental Patients, an Evidence Based Project" (2021). Doctor of Nursing Practice Final Manuscripts. 153.
Copyright held by the author
Cardiology Commons, Congenital, Hereditary, and Neonatal Diseases and Abnormalities Commons, Family Practice Nursing Commons, Health Communication Commons, Interprofessional Education Commons, Pediatric Nursing Commons, Pediatrics Commons, Primary Care Commons, Psychiatric and Mental Health Commons