This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2011
Let’s fix the law to help Huntington’s families, Kenneth P. Serbin
The faceless faces of Huntington's disease, Kenneth P. Serbin
Huntington’s disease, loneliness, and love, Kenneth P. Serbin
A cascade of emotions about Huntington’s disease, Kenneth P. Serbin
Huntington’s support group: seeking solidarity, fighting denial, Kenneth P. Serbin
Coming down from coming out: recharging the activism batteries, Kenneth P. Serbin
‘Drug hunters’ bring hope to Huntington’s families, Kenneth P. Serbin
Unmasking Gene Veritas: a Huntington's disease activist goes public, Kenneth P. Serbin
Feeling like an alien: going public about Huntington's, Kenneth P. Serbin
Memories of the DNA car, Kenneth P. Serbin
Blog Posts from 2010
The best Christmas gift of all, Kenneth P. Serbin
The mission of a lifetime, Kenneth P. Serbin
Vertex and the new wave of Huntington’s research, Kenneth P. Serbin
Globalizing the fight against Huntington's, Kenneth P. Serbin
Enjoying the life we have left, Kenneth P. Serbin
An expedition to the brain, Kenneth P. Serbin
Losing control, seeking connections, Kenneth P. Serbin
Out of the closet and on to the cure, Kenneth P. Serbin
More to lose than ever', Kenneth P. Serbin
Living in limbo, Kenneth P. Serbin
My friend, the fast lane, Kenneth P. Serbin
Traveling across America, togetherness and memories, Kenneth P. Serbin
Charting new territory: going public about HD, Kenneth P. Serbin
God, Huntington's disease and the meaning of life, Kenneth P. Serbin
Dad, could you get HD?', Kenneth P. Serbin