This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."

Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.

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Blog Posts from 2021

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A proud Huntington’s disease gene carrier’s message to his 'miracle baby' daughter on her senior year in college, Kenneth P. Serbin

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Bidding farewell to my ‘mind coach,’ a major ally in my fight to avoid Huntington's disease, Kenneth P. Serbin

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CRISPR, curing Huntington’s disease, and humanity’s future in Isaacson's 'Code Breaker', Kenneth P. Serbin

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‘Inequality is unsustainable’: a view of the quest for Huntington's disease treatments from the Global South, Kenneth P. Serbin

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‘The first at-bat is never a grand slam’: how Huntington's disease drug research has matured with the Roche and Wave setbacks, Kenneth P. Serbin

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Roche confirms tominersen as ineffective, while Triplet provides key details for trial of drug to slow major driver of Huntington's disease, Kenneth P. Serbin

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With PROOF-HD in the lead, the Huntington’s disease drug pipeline is still 'full of hope' (Coping with disappointing clinical trial results – Part II), Kenneth P. Serbin

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Overcoming a ‘heartbreaking’ moment for the Huntington's disease cause (Coping with disappointing clinical trial results – Part I), Kenneth P. Serbin

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Tough news for Huntington’s, other neurological disease patients: Roche halts dosing in historic clinical trials on signs of inefficacy, Kenneth P. Serbin

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Blog article No. 300: who exactly is Gene Veritas?, Kenneth P. Serbin

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Getting the COVID-19 vaccine and a new exercise bike to keep stable in the fight against Huntington's disease, Kenneth P. Serbin

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My arduous, lucky, and enlightening journey since my mother's death from Huntington's disease 15 years ago, Kenneth P. Serbin

Blog Posts from 2020

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A veteran neurologist’s book offers tools for navigating the 'turbulent world' of Huntington's disease, Kenneth P. Serbin

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After a horrid year, free streaming of ‘Dancing at the Vatican' is an inspirational gift and a call to aid Huntington's disease families, Kenneth P. Serbin

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Happy Thanksgiving! And hail to the pharmaceutical and biotech industries – and the scientists!, Kenneth P. Serbin

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Annual Huntington Study Group meeting reveals an HD community energized to aid families, develop treatments, Kenneth P. Serbin

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Triplet Therapeutics aims to transform the approach to treating Huntington's disease, similar disorders, Kenneth P. Serbin

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In this electoral season, let’s highlight our natural role as caregivers and support care professionals, Kenneth P. Serbin

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Wonder if you’ll get Huntington’s disease? Preparing for the big, 'intensely personal' decision to undergo predictive testing, Kenneth P. Serbin

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In the pandemic, we need to rediscover patience and grasp our responsibility, Kenneth P. Serbin

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Combatting the pandemic, Roche also forges ahead with critical Phase 3 Huntington's disease clinical trial, Kenneth P. Serbin

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Giving back during the COVID-19 pandemic, Kenneth P. Serbin

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In times of crisis, Huntington’s and other chronic disease communities provide examples of fortitude, Kenneth P. Serbin

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CHDI head scientist Pacifici: ‘hang on in the learning roller coaster ride of Huntington's disease clinical trials', Kenneth P. Serbin

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At Therapeutics Conference, landmark study of young gene carriers highlights how Huntington's disease researchers seek to solve critical puzzles, Kenneth P. Serbin