This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2015
Reinforcing the global fight against Huntington’s disease: a visit to Brazil and a reminder of our common struggles, Kenneth P. Serbin
Isis Pharmaceuticals launches historic clinical trial to silence Huntington's disease gene, Kenneth P. Serbin
Unraveling the mysteries of the mitochondria in Huntington's disease – and getting fast, clear, and useful results from research studies, Kenneth P. Serbin
Overcoming the Fear of the Lion: A Courageous Film About Genetic Testing and Huntington's Disease, Kenneth P. Serbin
The search for Huntington's disease treatments is indeed 'rocket science' – and we can all help build the rocket, Kenneth P. Serbin
Deciphering signals from Huntington’s disease brains in the search for treatments, Kenneth P. Serbin
The Huntington’s disease community can’t afford to lose momentum, Kenneth P. Serbin
Engaging a ‘scared population’ of Huntington’s disease families by respecting their journeys, Kenneth P. Serbin
The precious participation of the Huntington’s disease community in the quest for treatments: a report on the 2015 HD Therapeutics Conference, Kenneth P. Serbin
‘None of us are free until we are all free’: science and solidarity at the 10th Annual Huntington's Disease Therapeutic Conference, Kenneth P. Serbin
‘Darkness replaced by hope and light’: taking stock of Huntington's disease research, Kenneth P. Serbin
Huntington’s disease patients ‘feel better’ after takin Auspex compound to control chorea in clinical trial, Kenneth P. Serbin
Fighting – and writing – to stay healthy: ten years of 'At Risk for Huntington's Disease', Kenneth P. Serbin
Police killing of man with Huntington’s disease spotlights need for affected families to emphasize proactive, dignified approach, Kenneth P. Serbin
Blog Posts from 2014
Six cool L.A. ladies ‘bare the truth’ about Huntington's disease, highlighting an exceptionally creative year for advocacy, Kenneth P. Serbin
Sharon’s inspirational journey with CrossFit in the fight against Huntington's disease, Kenneth P. Serbin
Another major supplement, creatine, proven ineffective in the fight against Huntington's disease, Kenneth P. Serbin
Outrage over video of police’s rough handling of man with Huntington's disease spurs calls for justice, awareness, Kenneth P. Serbin
Moving toward a potential treatment: Isis, CHDI researchers outline upcoming Huntington's disease gene-silencing trials, Kenneth P. Serbin
News flash: Isis and Roche hope to start Huntington's gene-silencing trials in first half of 2015, Kenneth P. Serbin
Bidding farewell to CoQ10: a long-studied supplement proves ineffective in the fight against Huntington's disease, Kenneth P. Serbin
Making the threat of Huntington’s disease ‘small stuff', Kenneth P. Serbin
Can we afford the costs of orphan disease treatments?, Kenneth P. Serbin
New California stem cell chief stresses speed and efficiency in search for treatments, Kenneth P. Serbin
Fear of onset: the inescapable reality of the Huntington's disease gene carrier, Kenneth P. Serbin