This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2013
Braving bioethical challenges: the importance of Huntington's disease, Kenneth P. Serbin
One year out of the terrible, lonely Huntington’s disease closet, Kenneth P. Serbin
‘Tired of waiting,’ Huntington’s disease families engrossed in efforts to conduct clinical trials, Kenneth P. Serbin
The end of fear and exclusion: informing my health insurance plan about the risk of Huntington's disease, Kenneth P. Serbin
Hope, cutting-edge science, and poignant moments at the World Congress on Huntington's Disease, Kenneth P. Serbin
Reaching out to the ‘HD family’ at the World Congress on Huntington's Disease, Kenneth P. Serbin
Heading to Rio for the 2013 World Congress on Huntington's Disease, Kenneth P. Serbin
Advocacy meets science and medicine: personal enrichment and a coping mechanism for Huntington's disease, Kenneth P. Serbin
‘Predicting’ Huntington’s disease in the heartland, Kenneth P. Serbin
A gene-positive dad’s reflections on Huntington’s disease, parenthood, and the fragility of life, Kenneth P. Serbin
Going with the flow of time, Kenneth P. Serbin
Fighting for the option to care for Huntington’s disease patients at home, Kenneth P. Serbin
Strangling of patient in nursing home a shuddering reminder of subpar care for Huntington's disease, Kenneth P. Serbin
Do we need to shock the world to strengthen the Huntington's disease cause, Kenneth P. Serbin
Memories of genetic testing: from my mom to Angelina Jolie, Kenneth P. Serbin
A key new ally in the search for Huntington’s disease treatments, Kenneth P. Serbin
Feeling the hope, Kenneth P. Serbin
Quickening the pace towards a Huntington’s disease gene-silencing clinical trials: pharma giant Roche, Isis enter partnership, Kenneth P. Serbin
Brazil’s big place on the Huntington’s disease map, Kenneth P. Serbin
Big decisions while facing the threat of Huntington's disease, Kenneth P. Serbin
The Brain Activity Map Project: short- and long-term prospects for Huntington's disease research, Kenneth P. Serbin
The return of the Huntington’s whirlwind, Kenneth P. Serbin
Pope Benedict XVI’s resignation: a witness to aging, a signal for a new bioethics, Kenneth P. Serbin
‘No Marine deserted on the battlefield’: two surviving spouses join forces to speed the defeat of Huntington's disease, Kenneth P. Serbin
Junior Seau, Super Sunday, and our most important natural resource, Kenneth P. Serbin