This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2011
Huntington’s disease in the news and entertainment media - Part I: Stigma and genetic testing, Kenneth P. Serbin
Huntington’s disease and the financial jitters, Kenneth P. Serbin
BDNF and ‘Neurobics’: building a ‘beautiful mind’ against Huntington's, Kenneth P. Serbin
Making sense of Huntington’s organizations, and a call for unity, Kenneth P. Serbin
Waiting for symptoms: How long can I hang on?, Kenneth P. Serbin
One Man's Story: Entering the Light, Kenneth P. Serbin
Do-or-die time for Huntington’s clinical trials, Kenneth P. Serbin
No time for complacency: get ready for HD clinical trials, Kenneth P. Serbin
Some reflections on being named 'HDSA Person of the Year', Kenneth P. Serbin
Face to face at the Huntington's disease convention, Kenneth P. Serbin
The Huntington's disease high-wire act, Kenneth P. Serbin
S.O.S. for Huntington's disease families, and an important bill in Congress, Kenneth P. Serbin
Holding the potential cure in my hand, Kenneth P. Serbin
The Huntington’s community rising and converging, Kenneth P. Serbin
Bin Laden and HD, Kenneth P. Serbin
The diary of a Huntington's disease activist, Kenneth P. Serbin
The shadow career, Kenneth P. Serbin
Let’s fix the law to help Huntington’s families, Kenneth P. Serbin
The faceless faces of Huntington's disease, Kenneth P. Serbin
Huntington’s disease, loneliness, and love, Kenneth P. Serbin
A cascade of emotions about Huntington’s disease, Kenneth P. Serbin
Huntington’s support group: seeking solidarity, fighting denial, Kenneth P. Serbin
Coming down from coming out: recharging the activism batteries, Kenneth P. Serbin
‘Drug hunters’ bring hope to Huntington’s families, Kenneth P. Serbin
Unmasking Gene Veritas: a Huntington's disease activist goes public, Kenneth P. Serbin