This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2013
‘Predicting’ Huntington’s disease in the heartland, Kenneth P. Serbin
A gene-positive dad’s reflections on Huntington’s disease, parenthood, and the fragility of life, Kenneth P. Serbin
Going with the flow of time, Kenneth P. Serbin
Fighting for the option to care for Huntington’s disease patients at home, Kenneth P. Serbin
Strangling of patient in nursing home a shuddering reminder of subpar care for Huntington's disease, Kenneth P. Serbin
Do we need to shock the world to strengthen the Huntington's disease cause, Kenneth P. Serbin
Memories of genetic testing: from my mom to Angelina Jolie, Kenneth P. Serbin
A key new ally in the search for Huntington’s disease treatments, Kenneth P. Serbin
Feeling the hope, Kenneth P. Serbin
Quickening the pace towards a Huntington’s disease gene-silencing clinical trials: pharma giant Roche, Isis enter partnership, Kenneth P. Serbin
Brazil’s big place on the Huntington’s disease map, Kenneth P. Serbin
Big decisions while facing the threat of Huntington's disease, Kenneth P. Serbin
The Brain Activity Map Project: short- and long-term prospects for Huntington's disease research, Kenneth P. Serbin
The return of the Huntington’s whirlwind, Kenneth P. Serbin
Pope Benedict XVI’s resignation: a witness to aging, a signal for a new bioethics, Kenneth P. Serbin
‘No Marine deserted on the battlefield’: two surviving spouses join forces to speed the defeat of Huntington's disease, Kenneth P. Serbin
Junior Seau, Super Sunday, and our most important natural resource, Kenneth P. Serbin
Huntington's disease and the perils of adoption, Kenneth P. Serbin
Blog Posts from 2012
The gifts, Kenneth P. Serbin
The incredible lightness – and responsibility – of exiting the Huntington's closet, Kenneth P. Serbin
HDSA’s renewed commitment to critical research, Kenneth P. Serbin
Designing the best drug possible to defeat Huntington's disease, Kenneth P. Serbin
The definitive step out of the Huntington’s closet, Kenneth P. Serbin
Hope of clinical trials creates new, proactive outlook on Huntington's disease, Kenneth P. Serbin
Lifting Huntington’s families’ spirits with the promise of clinical trials, Kenneth P. Serbin