This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2017
Banning college football: an urgent objective for brain health advocates, Kenneth P. Serbin
Passing on the Huntington’s disease advocacy baton to the next generation, Kenneth P. Serbin
Blog Posts from 2016
This Thanksgiving, let’s show gratitude for disease researchers and drug hunters, Kenneth P. Serbin
‘Crying a few million tears’ for the fallen victims of Huntington's disease, Kenneth P. Serbin
Ionis Phase I Huntington’s disease trial at halfway mark: 'No surprises so far' means good news, Kenneth P. Serbin
Dreams for a better future: an opportunity we Huntington's disease people and our families are denied, Kenneth P. Serbin
Upbeat Huntington’s disease film, featuring undaunted family, aims for 10 million views, Kenneth P. Serbin
A family united against Huntington’s disease, Kenneth P. Serbin
From sheepish to self-assured in the fight against Huntington's disease, Kenneth P. Serbin
Just living life: a focus on what matters most in coping with the risk of Huntington's disease, Kenneth P. Serbin
Billboards: an old – but also new – way of projecting the Huntington's cause, Kenneth P. Serbin
Chief Huntington’s disease drug hunter: ‘every confidence first treatments' in the works, Kenneth P. Serbin
The little things that are really big: caregiving in families with Huntington's disease, Kenneth P. Serbin
Defeating Huntington’s disease starts with taking care of yourself and joining Enroll-HD, Kenneth P. Serbin
A key Huntington’s disease trial remedy gets Orphan Drug Designation, as yet another young life is cut short, Kenneth P. Serbin
Blog Posts from 2015
‘Concussion’: advocating for the truth about brain diseases, Kenneth P. Serbin
‘Twas the morning after Christmas – and Huntington's disease hit us like a ton of bricks, Kenneth P. Serbin
How to make law enforcement a friend – not a foe – of people with Huntington's disease (and other disabilities), Kenneth P. Serbin
With more Huntington’s disease clinical trials, volunteers need help with comparison shopping, Kenneth P. Serbin
Might I finally take part in a Huntington’s disease clinical trials? An update on the latest research, Kenneth P. Serbin
Huntington’s disease patients get first dosing in historic Isis Pharmaceuticals' gene-silencing drug trial, Kenneth P. Serbin
At-risk Angels pitcher Joe Smith at Huntington’s fundraiser: 'I'd give every dime I have for a cure', Kenneth P. Serbin
At key FDA meeting, Huntington's disease community insists on faster search for treatments, Kenneth P. Serbin
As he lay dying: FDA and Huntington’s disease families meet to ponder potential treatments, Kenneth P. Serbin
New film unmasks the raw reality of Huntington’s disease, Kenneth P. Serbin