This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2015
How to make law enforcement a friend – not a foe – of people with Huntington's disease (and other disabilities), Kenneth P. Serbin
With more Huntington’s disease clinical trials, volunteers need help with comparison shopping, Kenneth P. Serbin
Might I finally take part in a Huntington’s disease clinical trials? An update on the latest research, Kenneth P. Serbin
Huntington’s disease patients get first dosing in historic Isis Pharmaceuticals' gene-silencing drug trial, Kenneth P. Serbin
At-risk Angels pitcher Joe Smith at Huntington’s fundraiser: 'I'd give every dime I have for a cure', Kenneth P. Serbin
At key FDA meeting, Huntington's disease community insists on faster search for treatments, Kenneth P. Serbin
As he lay dying: FDA and Huntington’s disease families meet to ponder potential treatments, Kenneth P. Serbin
New film unmasks the raw reality of Huntington’s disease, Kenneth P. Serbin
Reinforcing the global fight against Huntington’s disease: a visit to Brazil and a reminder of our common struggles, Kenneth P. Serbin
Isis Pharmaceuticals launches historic clinical trial to silence Huntington's disease gene, Kenneth P. Serbin
Unraveling the mysteries of the mitochondria in Huntington's disease – and getting fast, clear, and useful results from research studies, Kenneth P. Serbin
Overcoming the Fear of the Lion: A Courageous Film About Genetic Testing and Huntington's Disease, Kenneth P. Serbin
The search for Huntington's disease treatments is indeed 'rocket science' – and we can all help build the rocket, Kenneth P. Serbin
Deciphering signals from Huntington’s disease brains in the search for treatments, Kenneth P. Serbin
The Huntington’s disease community can’t afford to lose momentum, Kenneth P. Serbin
Engaging a ‘scared population’ of Huntington’s disease families by respecting their journeys, Kenneth P. Serbin
The precious participation of the Huntington’s disease community in the quest for treatments: a report on the 2015 HD Therapeutics Conference, Kenneth P. Serbin
‘None of us are free until we are all free’: science and solidarity at the 10th Annual Huntington's Disease Therapeutic Conference, Kenneth P. Serbin
‘Darkness replaced by hope and light’: taking stock of Huntington's disease research, Kenneth P. Serbin
Huntington’s disease patients ‘feel better’ after takin Auspex compound to control chorea in clinical trial, Kenneth P. Serbin
Fighting – and writing – to stay healthy: ten years of 'At Risk for Huntington's Disease', Kenneth P. Serbin
Police killing of man with Huntington’s disease spotlights need for affected families to emphasize proactive, dignified approach, Kenneth P. Serbin
Blog Posts from 2014
Six cool L.A. ladies ‘bare the truth’ about Huntington's disease, highlighting an exceptionally creative year for advocacy, Kenneth P. Serbin
Sharon’s inspirational journey with CrossFit in the fight against Huntington's disease, Kenneth P. Serbin
Another major supplement, creatine, proven ineffective in the fight against Huntington's disease, Kenneth P. Serbin