This series features essays by Dr. Kenneth Serbin, Professor of History, originally posted on his blog, At Risk for Huntington's Disease."
Huntington's Disease (HD) is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death. Children of parents with HD have a 50-50 chance of inheriting the disease. There is no cure or treatment.
Blog Posts from 2022
Bridging the Huntington’s and early onset Alzheimer’s disease communities a report from a family conference, Kenneth P. Serbin PhD
With the constitutional right to abortion gone, an uncertain medical future for Huntington’s disease families, Kenneth P. Serbin PhD
Surfing through life with the spirit of aloha, Kenneth P. Serbin PhD
CHDI keynoter Charlotte Raven reflects on her fight against Huntington’s disease and the dashed hopes of a clinical trial, Kenneth P. Serbin PhD
After a difficult year for the Huntington’s disease cause, CHDI chief scientist feels ‘reinvigorated’ and ‘optimistic’ about quest for therapies, Kenneth P. Serbin PhD
History, Huntington’s disease, and the survival of the human race, Kenneth P. Serbin PhD
After setback, Roche to run new clinical trial with Huntington’s disease gene silencing drug, Kenneth P. Serbin PhD
Blog Posts from 2021
Huntington’s disease advocates, scientists generate hope after a difficult year in the search for treatments, Kenneth P. Serbin PhD
A proud Huntington’s disease gene carrier’s message to his 'miracle baby' daughter on her senior year in college, Kenneth P. Serbin
Bidding farewell to my ‘mind coach,’ a major ally in my fight to avoid Huntington's disease, Kenneth P. Serbin
CRISPR, curing Huntington’s disease, and humanity’s future in Isaacson's 'Code Breaker', Kenneth P. Serbin
‘Inequality is unsustainable’: a view of the quest for Huntington's disease treatments from the Global South, Kenneth P. Serbin
‘The first at-bat is never a grand slam’: how Huntington's disease drug research has matured with the Roche and Wave setbacks, Kenneth P. Serbin
Roche confirms tominersen as ineffective, while Triplet provides key details for trial of drug to slow major driver of Huntington's disease, Kenneth P. Serbin
With PROOF-HD in the lead, the Huntington’s disease drug pipeline is still 'full of hope' (Coping with disappointing clinical trial results – Part II), Kenneth P. Serbin
Overcoming a ‘heartbreaking’ moment for the Huntington's disease cause (Coping with disappointing clinical trial results – Part I), Kenneth P. Serbin
Tough news for Huntington’s, other neurological disease patients: Roche halts dosing in historic clinical trials on signs of inefficacy, Kenneth P. Serbin
Blog article No. 300: who exactly is Gene Veritas?, Kenneth P. Serbin
Getting the COVID-19 vaccine and a new exercise bike to keep stable in the fight against Huntington's disease, Kenneth P. Serbin
My arduous, lucky, and enlightening journey since my mother's death from Huntington's disease 15 years ago, Kenneth P. Serbin
Blog Posts from 2020
A veteran neurologist’s book offers tools for navigating the 'turbulent world' of Huntington's disease, Kenneth P. Serbin
After a horrid year, free streaming of ‘Dancing at the Vatican' is an inspirational gift and a call to aid Huntington's disease families, Kenneth P. Serbin
Happy Thanksgiving! And hail to the pharmaceutical and biotech industries – and the scientists!, Kenneth P. Serbin
Annual Huntington Study Group meeting reveals an HD community energized to aid families, develop treatments, Kenneth P. Serbin
Triplet Therapeutics aims to transform the approach to treating Huntington's disease, similar disorders, Kenneth P. Serbin